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After a dementia diagnosis

There is time to plan after most diagnoses. Using it well changes how the later years go.

Quick answer

In the first month, make sure legal documents are in place while your parent can still sign them (a durable power of attorney, an advance health care directive and, if appropriate, a POLST form), review driving and home safety, and learn the stage of the disease from the physician.

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Last verified: October 2026

What should an Oahu family do in the first month after a dementia diagnosis?

In the first month, make sure legal documents are in place while your parent can still sign them (a durable power of attorney, an advance health care directive and, if appropriate, a POLST form), review driving and home safety, and learn the stage of the disease from the physician.

Hawaii's Executive Office on Aging publishes information on advance health care directives and POLST. An elder law attorney can handle the power of attorney and estate planning in one visit.

Where can people with dementia live on Oahu?

People with dementia on Oahu live at home with support, in small care homes or expanded ARCHs, in foster family homes, in assisted living, or in nursing homes; Hawaii has no separate memory care license, so the fit depends on how each setting handles wandering, night-time needs and behavior changes.

On Oahu that spans 455 licensed care homes, 1,111 foster family homes, 14 assisted living facilities and 27 certified nursing homes. Because OHCA's rosters do not flag dementia care, ask each one directly.

How do we keep a parent with dementia safe at home longer?

Keep a parent with dementia safe at home longer with a steady daily routine, medication management, door alarms or GPS devices if wandering starts, adult day care for structured days, and respite so the main caregiver can rest.

EAD's caregiver support program offers counseling, support groups, training and respite. Adult day care centers on Oahu give people with dementia company and activity in a supervised setting.

How do we pay for dementia care?

Dementia care is paid privately, through long-term care insurance, by VA for eligible veterans, or by Med-QUEST long-term care for members at nursing facility level of care, which many people with moderate to advanced dementia meet.

Plan early: the 60-month look-back means asset decisions made now affect eligibility later. See Med-QUEST long-term care.

What changes as dementia progresses?

As dementia progresses, needs usually move from reminders and supervision to hands-on help with every daily activity, and then to full care, so plan for at least one change of setting or a large increase in help over the years.

Choosing an expanded ARCH or a setting that can keep residents as needs rise can reduce the number of moves.

At a glance

Planning early meansWaiting means
LegalYour parent signs their own documentsGuardianship proceedings may be needed
HousingVisiting homes before a crisisTaking the first available bed
MoneyPlanning around the look-backPenalty periods on recent gifts
CaregiverRespite in place before burnoutA caregiver who breaks down first

Sources include Hawaii Administrative Rules chapters 11-100.1, 11-90 and 11-800, HRS 321-481 and 321-1.8, Office of Health Care Assurance rosters and pages, the 2026 HHS poverty guidelines, CMS, CareScout and VA rate tables as cited above; see our editorial standards.

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